Sunday, October 21, 2012

Home Sweet Home

We are home!  I know, I am sorry I have not posted in a couple of days, but we have been getting settled back in.
 
Natalie's appointment with Dr. Zellers was actually moved up to Thursday.  He took her off the potassium, which she is super excited about, because from what I hear, it does not taste good at all. She still has a little fluid in her lungs, but he said that would be expected on the fontan and could last up to 6 weeks post op.  Good news, we can monitor that her in Amarillo!  Natalie will go for labs and xray here locally this week and probably every week until her chest is totally clear.  She is still on medication to help with the fluid,  but the medication allows her to hold onto the potassium.  The is good, so we do not bottom out her potassium again. 
 
She came on home with 4 medications, two of which we have taken and she will take the rest of her life.  The other two medications we will eventually wean her off of.  She does go back to Dallas in about a month.  Dr. Zellers is so awesome!  He is working us in the week of Thanksgiving so we can just stop off in Dallas for a night and day on our way to Austin verses making a whole other trip out of it.  I am done with packing a bag for a while. I am loving living out of my closet right now!
 
Natalie is super happy to be home!  She is still not eating great, but getting better.  Her activity level is still not great, but she is only 3 weeks post op from open heart surgery, so I do not blame her.  She also has pretty strict restrictions for the next 5 weeks too.
 
Carter was pumped that we were home!  He did not know we got home Thursday, so I surprised him Friday picking him up from school.  I think I got the biggest hug ever!
 
We have just been relaxing this weekend and enjoying being together as a family under one roof, our roof.  Thank you all for your continuous support and prayers!  We could not have done this without all of you.
 
I will continue to post, but probably only once or twice a week. 
 
1 Samuel 1:27
"I prayed for this child, and the Lord granted me what I asked of him"

1 comment:

  1. Welcome back to Amarillo!! So glad you are all home together and that Natalie is doing well. So many prayers answered and we will continue to pray for her as she continues to get better! I know it feels amazing to sleep in your own bed again and just be normal! Glad you're back! :)

    ReplyDelete