Natalie is two months! I can't believe how time flies, when you constantly forget what day of the week it is.
Natalie is doing pretty good today. The doctors decided to only feed her via feeding tube. She is starting to show signs of reflux and when she gets mad or upset, her stats drop. We are trying to keep her calm and continue to keep her stable, so feeding her by mouth has become a challenge. She takes the bottles great, it is just afterwards. The feeding tube takes the breastmilk all the way to her tummy so is bypasses her getting reflux, spitting and helps the gas. The downside to the feeding tube is she full most of the time so she sleeps more.
I finished talking to all the numerous people on the transplant team today...wow, I feel like I have just had a major interview almost. They really want you to understand everything and every aspect of the transplant before, during and after so it is a lot to take in all at once.
Natalie will not be listed right away, as we still have the option of surgery. We are still going day to day and will be that way for now on.
Please pray for Natalie to stay stable and continue to grow. I also ask that you pray for my little man, Carter. I can't image what he is going through and what he must think. We have been trying to have some sort of a normal lifestyle for him, but he had a small break down this afternoon. He wanted to go to Carter's House and when we pulled up at the townhouse, he lost it.
Natalie is doing pretty good today. The doctors decided to only feed her via feeding tube. She is starting to show signs of reflux and when she gets mad or upset, her stats drop. We are trying to keep her calm and continue to keep her stable, so feeding her by mouth has become a challenge. She takes the bottles great, it is just afterwards. The feeding tube takes the breastmilk all the way to her tummy so is bypasses her getting reflux, spitting and helps the gas. The downside to the feeding tube is she full most of the time so she sleeps more.
I finished talking to all the numerous people on the transplant team today...wow, I feel like I have just had a major interview almost. They really want you to understand everything and every aspect of the transplant before, during and after so it is a lot to take in all at once.
Natalie will not be listed right away, as we still have the option of surgery. We are still going day to day and will be that way for now on.
Please pray for Natalie to stay stable and continue to grow. I also ask that you pray for my little man, Carter. I can't image what he is going through and what he must think. We have been trying to have some sort of a normal lifestyle for him, but he had a small break down this afternoon. He wanted to go to Carter's House and when we pulled up at the townhouse, he lost it.
Dear Libby and Larry,
ReplyDeleteI just heard about Natalie and will start putting her in our prayers and ask our church to add her to our prayer list. We have had 2 little ones with heart problems in our church and the families are postive that prayer healed their hearts and they are now living normal healty lives. Jimmy and I will also keep ya'll and Carter in our hearts and prayers. For we know that with Courtney and her diabetes that the rest of the family can be in confusion and distress. Your attitude is awsome and positve attitude is I think is the way to go. I am going to give you Courtney's cell number and if there is anything that you need to know maybe she can help you out. She is in the Plano area in a little town call Murphy. She works in Lewisville at Rene Isip Toyata of Lewsiville.
Her phone number is 972-877-6160. Jimmy and I wish you and your family good health and love,
Jimmy and Stacey Howell